This was my biggest question during "Transplant Camp" in June. When I asked the mentor panel this question, one person recalled disabling panic attacks and another talked about her fatigue from menial activities like putting in contact lenses.
Earlier this summer the multiple ER/ICU trips and subsequent anxiety were unmistakable signs that the transplant option might be our best choice.
Over these waning days of summer some smaller quality of life measures have affirmed that decision. Last weekend I was cutting up a watermelon and found myself short of breath. Today I was going through clothes deciding what to pack, keep and donate when I realized I was taking breaks between each drawer.
I think most of us can do better about taking life and its blessings for granted - even folding laundry.